48 Hours

We have officially passed another big milestone for Blake....we are 48 hours post surgery and he continues to do really well. We just saw Dr. del Nido (Blake's surgeon) and he felt Blake had really turned a corner. Tomorrow they are going to try to take him off the paralytic (muscle relaxers) and allow him to move. They will slowly try to take him off the sedation and the ventilator which is a REALLY big step as it can often take kids 5-7 days for them to try that for the first time. Our Superman Blakey Bear is going to get his first try in just 3. There is a 50/50 chance whether the left side of his heart will be prepared (that side of his heart has had the most impact from the surgery because it essentially wasn't doing any work until now) and he will tolerate it.

In other good news, he is showing some signs that his heart is doing some conduction on its own underneath the pace maker. It isn't a lot right now but it gives some hope that he won't need the pace maker later.

They are having some issues keeping his temperature down but they have him on a cooling blanket to try to keep it regulated. He isn't actually running a fever but they like to keep him on the cooler side so his heart doesn't have to work as hard and keeps his blood pressure lower. This will be very important as they release the paralytic and sedation tomorrow.

Thank you for all the love, support, good energy, positive vibes and prayers! Please keep them coming because they are obviously working!

We have been able to speak to Aidan & Riley each day over FaceTime which has been a treat for all of us. It is definitely a strange feeling for our family to be separated but we are SO thankful for Tom's amazing sister Sheila and the love and care she is giving to them while they remain in New York during this critical time for Blake.