Transition day

We have officially moved from the CICU to the floor. Blake's heart function looks good and now the goal is to really ensure everything is good with his pacemaker and that the rest of his body can fully recover.

Since about 4am this morning Blake has been feeling pretty rough. They are still trying to keep Blake dry to ensure that his lungs stay clear. However, being dry in combination with everything else his stomach has been through has caused him to vomit throughout the morning. Unfortunately his potassium is low because they are keeping him dehydrated and the potassium replacement causes nausea. They are continuing to give him pain medicines and anti-nausea medications.

He did get to leave his room today in a green car (ride on toy) to head down for a chest x-ray. We took advantage and took him down to the lobby to check out the fish tanks while we were out...that made him really happy. He did well but it is hard to see him struggle as he regains his strength. It was the first time he had been unsupported and he is having a little trouble controlling his neck. The goal is to get him up and try to move every 30 minutes as he can tolerate it. We hope that if he can move it will help his system move and give him relief from the nausea without adding another medication. I know over the next few days he is going to need a little push but then I remember he had two heart surgeries over the last 10 days and I just want to hold him!

We are counting down until Aidan and Riley get here today! We are hoping to take them on a walk to the garden later this afternoon and let Blake go outside for the first time.